A flower with text "In life's name"
Oh wow ... I was really really feeling bored and cabin-fever-ish today so I hopped in my power chair to go down the street for just a few minutes ... didn't really have the energy for it but I was all frustrated at being home so I figured a few minutes couldn't hurt.

On my way down there the steering seemed to be pulling a bit to the left but I thought it was probably the angle of the joystick and it's a new chair still so I'm not totally used to it. Independently from that I noticed that it wasn't going as fast as usual, although the batteries were charged fully, but I wasn't sure why and it wasn't a huge amount so I assumed my own perceptions were wrong.

Got down the street and lo, a flat tyre! Phoned the roadside assistance and they were pretty quick to arrive. The guy pumped up the tyre and then followed me home and we stopped 3 more times to top it up because it was leaking pretty fast. Made it home with his help though - thank you RACV - and I've ordered a pair of new tubes so I can replace this one and have another spare around.

I'm feeling really a bit shaky because it was somewhat scary to be suddenly without mobility, but also feeling quite proud of myself for coping! And very very very zonked now ... going to take a nap.... mini ...
A flower with text "In life's name"
This is my official week of unsubscribing from ALL THE THINGS.

Well, not quite all of them ... but mailing lists, email newsletters, email advertisements, RSS feeds, DW communities, reading list people, etc. Pretty much for each one I'm thinking "will I really miss this if I don't see it?" and unsubscribing unless the answer is that I would hate to be without it.

I've been overloaded with information since I'm sicker than 6 months ago so I can't deal with quite as much, and also it creeps up so easily in this age of information!

So yes, if you notice I've unsubscribed from your Dreamwidth or LiveJournal blog, this is why and please take no offence. You're welcome to keep reading my stuff if you'd like to, I don't lock things so I don't use access lists (LJ: "friends lock") and I'm happy to have people reading anything they enjoy.

What's your oddest-seeming method of self-care??

Hugs,
r
A flower with text "In life's name"
This is an update to go with my End Of 2010 Thoughts post.

I had to make notes for an upcoming doctor's visit so it's not as much expanded as it could be, but I think it makes sense...

My energy and general abilities are down significantly compared to 12 months ago. For example:

a) Was able to sit out of bed 2-3 hours/day. Now 0-1 hour/day.

b) Was able to walk outside briefly. Now inside only.

c) Was using hospital bed with the head raised to around 40 degrees from horizontal during the day. Now more like 20 degrees on average.

d) Exercise routine was 30 minutes physio including 6-8 minutes on recumbent exercise bike, or ~200m at pool. Now able to do 10 minutes of physio including 4-5 minutes on exercise bike, no swimming.

e) Was able to go out 1-3 times per week including some longer trips. Now 0-2 times per week short trips only.

f) Brain was functioning well enough that I was doing some programming again and some OpenUniversity lectures early this year. Can't do this at all now and have had to stop programming.

g) My allergy symptoms have been getting steadily worse all year despite allergy meds. This is being seen to but it's yet another problem I have to deal with.


I'm not nearly as bad as I was before 2010, but I'm definitely on a downhill patch. It's depressing and a bit scary and a lot frustrating, as it's been gradual but apparently inexorable. I don't know what's causing the decline and so I don't know how to stop it. I hate being helpless!!

(Note: Please don't point out how much better I am than the worst, or anything about gratefulness. I know I'm better than then and I am grateful - hugely grateful - that I'm this healthy. Being grateful doesn't stop me from also being frustrated, sad, or scared that I'm in this position now though. I just find it quite upsetting when I say "i'm scared/sad/frustrated" and people say "be grateful!" because it feels like they're missing the whole point)

Love you all,
r
A flower with text "In life's name"
These are some bookmarklets I've put together to make things more readable on the web. When I come to a page that I have trouble reading I use these which strip out the web page's own formatting and insert my own formatting. There are four of them and they get progressively more "aggressive" in removing the web page's formatting and substituting my preferred formatting.

Dreamwidth strips out JavaScript that's in posts so you can't mess up people's reading pages, so I've posted the full bookmarklets information on my own web space.

In case you missed that link, it's: http://notdoneliving.net/bookmarklets.html


Leave any comments, requests, feedback, etc. below.


Cheers,
r
Home-made purple cloth, text 'Clan Mitchell'
Idea #1: Small red heart-shaped bag, zipped around the edge similar to the Purlbee heart shaped pouch tutorial except I was thinking I'd make them from red felt and embroider them. Mine will also be smaller and the "handle" section will be a small loop so they can be attached to something else. This is what I wanted the red zipper for.

Idea #2: Pants! I saw these super funky black cord pants on Etsy while looking for something else and then later that night had a brainwave. I have some pairs of lovely wonderful comfy black jeans which are just a bit too narrow for me. I also have a glorious wonderful colourful quilt made by my aunty many years ago, and it's so old it's falling apart. I can split the outside side seams on the black jeans and add a strip made of patches from the quilt fabric. Bingo: New use for quilt, newly comfy jeans. Very enthused by this idea.

And a poll ... once I had the pants idea I thought I'd sit down and cut some of the fabric out to use for that so I went to find my seam ripper.... and I can't. My seam rippers disappear with frightening regularity ... somewhere in my house there is a secret seam ripper stash with twenty of those little guys all gloating about getting out of work!

I have this idea that every regular crafter has at least one thing they regularly lose ... what's yours?

Poll #8980 What Craft Tool Do You Lose?
Open to: All, detailed results viewable to: All, participants: 22



I lose my...

View Answers

seam ripper
10 (45.5%)

knitting needles
1 (4.5%)

crochet hooks
3 (13.6%)

scissors
15 (68.2%)

sewing needles
11 (50.0%)

entire project! It takes talent...
6 (27.3%)

I never lose anything, I'm totally 100% organised!
0 (0.0%)

I lose something else which I will tell you about in the comments
11 (50.0%)

TICKYBOX
11 (50.0%)

Hands crafting a braid, with the words 'Clan Mitchell'
I had AN IDEA this morning. It was a craft-related idea which isn't actually relevant here except for this: I needed a zip.

It had to be, preferably, a red zip.

I had no zip.

I definitely had no red zip.

BUT I have the gloriously wonderful The Little Sparrow Shop just down the road and they reopened today after being closed for Christmas/New Year.

Being a sensible person (ha!) I phoned them. Yes, they did indeed have red zips. One point for me!

I grabbed my powered wheelchair and nipped down there and poked their red zips until I finally decided to get all three different sizes because I wasn't sure which would work best for my idea. I also realised that I was almost out of red felt so I grabbed some red felt too. Then I wasted more energy looking at all the wonderful craft things but resisted the temptation to buy anything I didn't need.

On the way home I realised that it was so hot that once I got home I would have no energy to actually start making my wonderful new idea-project since I had just wasted all my energy driving around in my wheelchair.

Then I knocked a chunk out of my doorframe by failing to remember quite where the edges of my new wheelchair were.

Then I ran over the cat's water bowl while trying to park the chair, spilling water all over the floor.

Back in my nice coooooool air conditioned room in my comfy bed I realised that I was 35 minutes late in taking my midodrine, the tablets where I have to be accurate to about 15 minutes in the timing where I take them. Messing this up ensured that not only have I wasted all of today's energy but probably some of tomorrow's too.

Finally, writing this up, I realised that if I had just phoned my helper - who was doing my shopping very close by while the above farce was taking place - she would have happily picked up the zippers for me.

It's one of those days... but at least I'm laughing about it!

Happy New Year, friends :)
r
Sleeping cat draped over cushions
This week has had many positives and negatives:

+ Met a net.friend for the first time on Monday and we got on fabulously and had a brilliant time! I hope to spend lots more time with her, both our health statuses permitting.

+ Had a very productive appointment with a new orthotist (brace/splint person) who was extremely experienced and very knowledgable in relevant things.

+ New orthotist thinks he can manage to brace up my ankles so I can walk without ankle pain and also fixed up my wrist brace where it was rubbing skin off my thumb. AND he's going to apply for the state funding program to pay for the quite expensive ankle braces (dynamic AFOs) which is great.

- In stark contrast to the above appointment, the day after that I had a very useless and frustrating medical appointment with the allergist at the public hospital. The appointment involved FIVE HOURS extra useless waiting for various things (actual time of things happening, including travelling both ways, was about an hour and a half, so I was out of the house for six and a half hours) and after all that I mostly got "keep doing what you're doing with no changes" although I thought I was fairly clear about the things that I wasn't happy about. Very disappointing.

+ But my new wheelchair has finally arrived! It's minus one small hook on the back, as the seating place lost it, but it'll be easy to screw in once it arrives here - they already drilled the screw holes and such. New wheelchair is WONDERFUL and will merit it's own post I suspect once I've got used to it - it does need reprogramming because the joystick response is very delayed at the moment, the opposite of how I like it, but that's happening on Wednesday. Sweet Christmas gift!

- Following allllll the above excitement I am so overtired and low on energy that it's not funny. Trying hard to rest up before CHristmas so I can enjoy it.

- Also migrainey, probably because I'm so overtired.

rb

22 Nov 2011 06:43 pm
A flower with text "In life's name"
Am exceedingly happy to report I now have an actual computer! After eight days with no computer and no iPad, this is something of a happy thing.

My iPad has been on the blink now for a bit and is waiting at the hole-in-the-wall repair replace to be blessed with a new dock connector as it is not hugely useful for me without the ability to sync to the computer.

My trusty Mac Pro computer has been upgraded to a Mac Mini and as part of the deal the wonderful folk at Streetwise Hawthorn agreed to transfer my mountain of data to the new Mac Mini and NAS to save me days of messing around with USB drives setting things up. This seemed like a simple and quick thing to do until they started looking and discovered bad sectors corrupting many things on the Mac Pro - cue 5 more days of Dan and the other Dan at Streetwise heroically rescuing my data off these bloody disks. And then this morning they showed up (complete with a cute hat!) and installed the new computer and the NAS and hooked up all my bits and pieces with very good grace.

I am still astonished at how incredibly TINY the Mac Mini is... I knew the specifications for size and somehow still envisioned something with at least twice the volume this thing has. It's sitting on my bench looking quite stupid next to some enormous old peripherals including a lunchbox sized EyeTV 410 digital TV tuner which is now larger than my entire new computer.

... am now doing the usual multi-day "install ALL THE THINGS" dance.

r
Hands crafting a braid, with the words 'Clan Mitchell'
My helper and I made these muffins today and I love the recipe so much I thought I should share it. It's very simple to make and quite resistant to mistakes. You can easily adapt it to be gluten-free if you skip adding the optional flour.

Oh and they taste like chocolate muffins - they only have "zucchini" in the title because that's the main ingredient - it doesn't really have any taste though.




Low Carb Chocolate Zucchini Muffins


(Makes approx 20 muffins)

200g cream cheese, at room temp
120g butter, at room temp
1 cup sugar or equivalent alternative sweetener (I usually use Splenda)
5 eggs
350g zucchini (I use 2 large zucchinis which I suspect is often more than 350g)
1 tsp vanilla extract
2 cups almond meal
1/3 cup finely chopped walnuts or other nuts
1/3 cup shredded coconut
1 tsp ground cinnamon
2 heaped tbsp unsweetened cocoa powder
1 tsp baking powder
1/2 tsp salt
(optional: half to one cup of self-raising flour. It helps the muffins stick together better and is very little carbs when divided between 20 muffins, but they work perfectly well without this if you prefer not to use it.)

Wash and then grate the zucchinis. The zucchini works perfectly well if it's grated with the skin on - just trim the end where the stem is - and sort of "disappears" into the mix so you won't notice it when you're eating. If you're cooking for kids who hate vegetables though you could peel the zucchini first so the green colour doesn't show!

Pre-heat oven to 180C/350F.

Fill 2 muffin trays with patty pans/cupcake liners/paper cases - the mix is very sticky and crumbly, you will need patty pans and not just greased trays! Actually I usually use two paper cases for each, one inside the other.

In a large bowl, beat the cream cheese and butter until smooth. Add the sugar or other sweetener and beat until combined.

Beat in the eggs, one at a time, blending well after each addition.

Stir in the zucchini and vanilla.

In a separate bowl mix the almond meal, coconut, cinnamon, cocoa, baking powder and salt. You can add the walnuts at this point or reserve to sprinkle them on the tops of the muffins.

Stir the dry ingredients into the zucchini mixture.

Divide the batter evenly between the prepared pans - leave space at the top as they will rise more than you expect! It's better to have a larger number of very small muffins. Sprinkle walnuts on top if you didn't add them earlier.

Bake in oven for approx 60 minutes, checking after 45 minutes. When muffins look "done" and are firm and drying on top then turn off the oven but leave muffins in the oven and leave the oven door shut. The "cooking" process for these needs to dry out a huge amount of liquid so I usually leave the oven door shut until the oven is cool (several hours or overnight).These freeze really well so you can grab one from the freezer and toss it into a bag to have later.




I do not really understand why the cooking process for these is so unusual but it works this way!

I'd be interested to hear if anybody adapts this and what you do. I put together this recipe from other zucchini muffin recipes online so it's not very original but doesn't exactly match any of the recipes I mixed.

Cheers,
r
Pile of thick books labelled "Geek"
iPhone users with iOS5, how is the alarm mechanism? Since my iPad is refusing to talk to my computer I can't upgrade it to iOS5 and this is a very important issue for me:

I need to take medications NINE times every day... impossible to remember Some of those times very depending what time I wake up, and others are fixed times during the day. I have been using the Android app "Alarm Clock Plus" for this. The features I use are:
  • Very easy to set once-off alarms as well as daily repeating alarms

  • Very naggy alarms which are hard to accidentally dismiss! This is the killer feature for me. I set the alarms to automatically "snooze" if I don't acknowledge them and to repeat alarming until I do acknowledge them manually. The alarm screen is about 90% "snooze" button with a fairly small "dismiss" button in the corner so if I hit a bit of the screen by mistake when I pick up the phone it's very unlikely to accidentally dismiss the alarm. Alarms also still go off when phone is in silent mode.


Since these medications are absolutely vital for me to be able to do stuff, I have to let the phone be very naggy about it!

I know in iOS4 I can't set an alarm that will continue to nag me unless I remember to leave that application active on the device when I turn it off and that's just not practical. How is iOS in this regard?

It's been instructive to have the Android phone to contrast with my iOS experience - everything is so different! At the moment naggy alarms are on my fairly short list of "things Android does better".

Cheers,
r
Pile of thick books labelled "Geek"
One of the things I really find useful with my iPad is using iTunes Home Sharing so that I can lie in bed and listen to things from my Mac's iTunes library.

I know that I can sync stuff to the iPad but that means I have to know in advance what I'm going to listen to and sometimes I change my mind or forget to plan or whatever and setting the iPad to play from the Mac's iTunes library is really handy.

But my iPad isn't working at the moment (long story) so I just have my tiny cheap little Android phone. The phone only has 4gb of memory space (my iPad has 64gb!) and syncing stuff to Android from my Mac is much more of a chore than syncing stuff to the iPad, so the likelihood that what I want to play will not be on the phone is very high.

So I went looking for an Android app to access my iTunes library remotely and ... it was really hard to find! Asked a few Android-using friends and they blinked and looked vague and nobody I could find had a setup that did what I wanted.

Eventually with the help of [personal profile] geekosaur I have figured out that a combination of two Android apps will do the trick:

1. iTunes Remote control (there are many of these, I'm using Remote For iTunes Pro - FREE)
2. AirBubble

Firstly the iTunes Remote - this allows you to control iTunes from the Android device. These will leave the iTunes playing on your computer via your computer's own speakers though ... no good for listening in the bedroom!

AirBubble lets your phone pretend to be an AirPlay speaker for the purposes of iTunes. The free version works for 30 minutes only but the license only costs US1.99 to remove the limitation.


Setting everything up is a bit fiddly the first time, but it gets much easier afterwards. This is the first-time-ever set up sequence:

1. Start AirBubble on the phone. The user interface on this program is very unhelpful but it should now say "Accepting connections" in the "Status" line up the top of the screen - you don't need to do anything except start the program.

2. The third heading on the AirBubble screen says "Network name" and under that the actual name. You can change it if you like, but whether or not you change it take a note of the final name.

3. Go to iTunes on your computer. In the bottom right hand corner of the iTunes screen you'll see the box with an arrow icon appear, this lets you know that AirPlay speakers are available. Click on this icon and one of the options should match your "Network name" from step 2 - select that one.

3a. If you do not see the AirPlay icon in iTunes then wait a minute or two - sometimes it seems to take a moment to "notice" there's a new speaker around.

4. You have now set up iTunes to play *to* your phone. Start iTunes playing via your computer and (after a few seconds delay) you should hear the sound coming from the phone instead of the computer! The AirBubble screen will also change to say "Streaming from 192.168.1.1" (probably with a different number - it's your local IP address).

5. Now you need to be able to control iTunes from the phone too. Start up the iTunes Remote program (leaving AirBubble on in the background). Press the "menu" key on your phone and select "connect" and then "connect" again on the screen that pops up. You will see a 4-digit code on your screen.

6. On the Mac computer check the left hand column in iTunes. Under the "Devices" column you'll see "Android Remote" has popped up. Click on that entry and enter the 4-digit code you see on your Android screen, then click "OK". Now you can control iTunes via the phone.

6a. If this doesn't work, make sure you haven't set up iTunes to disallow remote controls!

7. Press "play" on the iTunes Remote program and you should hear your audio playing via your phone!

Once this is all set up it's much easier to use subsequent times! This is the sequence I use to start things up now it's all organised:

1. On the phone: Start AirBubble

2. On the computer: Select the AirPlay speaker in iTunes bottom right corner

3. On the phone: Start iTunes Remote.

4. On either device: Press "play".

This isn't a perfect setup - the most annoying part is the several second delay between pressing something on the iTunes Remote program and hearing the results in the start/stop/change of audio. But it works fine once it gets going so it's a very minor irritant.


On my very small not-very-powerful Android phone I find that if I try to run both of these programs in the background and play a game on the phone too that the audio sometimes messes up. If I leave the phone be and just listen it's fine though, so I guess my phone just can't handle all three things at once.

The specific iTunes Remote program that I am using (the one I linked above) is fiddly and annoying to use for choosing what to play on my very tiny phone screen, so what I have mostly been doing is starting the audio via the Mac and then pausing the audio on the phone and wandering to my bedroom. This way the only buttons I really need are the "play" and "pause" ones and I can listen happily to my audio book until I want to sleep and then turn it off. Almost perfect!!

The thing that would most improve my listening at the moment is a "jump back 1 minute" button for those moments when my mind wanders. Let me know if you are aware of an iTunes remote control that has this function!

Cheers,
Ricky

PS
Once things are set up you can switch the speaker selection via iTunes Remote also (press the "menu" key, then "more", then "speakers") which means you don't actually have to go to the computer as long as iTunes is running. You can also set up both iTunes Remote and AirBubble to always run in the background if your phone has the spare capacity. These instructions are generally written to be the most simple and hopefully easiest to understand - not the most comprehensive :)
Reid points a gun at the camera, text "Damsel in disress"
It's 4:30am and I am still awake. Insomnia sucks.

Dropped a ceramic cereal-type bowl this morning and scored a direct edge-on hit on the toenail of my big toe. OUCH! Was 18+ hours ago and still hurting badly - I may have to roll down to the doctor's tomorrow and get it checked out. It's not visibly swollen or discoloured/bruised at the moment, just hurting like a very painful toe.

I finished sewing a felt stegosaurus today! I drew the pattern before sewing it and have kept a copy in case of a need for further monsters too, but I think the pattern will be revised if I do another one - in retrospect, it would be easier to sew the body and legs separately and then attach them.

Visual description: Dinosaur made of a very pretty felt which varies between dark brown and cream colour, vaguely resembling a stegosaurus I hope. There is a ridge of triangles along the spine made of a pinkey/orangey felt. It's about as large as my hand if I spread my fingers out.

If you check out the rest of my arts and crafts photos on Flickr you can spot some in-progress photos and a wonderful shot of vicious felt stegosaur attempting to eat dog! I am currently dog-sitting for my middle brother and sis-in-law while they are on their honeymoon. The dog is teensy tiny, it's a cross between a pomeranian and a long-haired chihuahua and it's wickedly cute! It's exhausting having three animals here but quite enjoyable too.

I have been doing some more programming for Dreamwidth which is really nice. I'm working on things that regular users won't see at the moment but I still feel like I'm really stretching my brain and it expanding in response - a nice feeling. Probably illusory, but still nice!!

In less fun news I'm still really sick following my brother's wedding 3 weeks ago (plus a bit). It knocked me around more than I expected which is really disappointing, plus the weather here has been very variable which is really not helping. I have been sleeping a lot and doing a lot less "up" stuff - previously I was able to do some small bits of gardening (sitting beside the garden pulling weeds), sitting in the recliner, or sitting on the kitchen floor to direct people at cooking for me, but I'm pretty much back in bed all the time now. I don't like it! Here's to more health...

Love you all.
A flower with text "In life's name"
Never time/energy/tuit to write about all of my things so I'm just going to write about three things from today:

1. Saw the allergy people today which is good because my hay fever is getting epic and debilitating and that sucks. No answers today but tests have been done and I go back in two weeks. This is the boring bit of this post.

2. I look like an extra from Dr Who today with black pen marks all over my inner forearms from the allergy skin pinprick tests. This makes me feel highly amused.

3. I made two women very happy by paying for their fares home from the hospital. We shared a cab because getting cabs at 4pm is really hard (it's cabbie shift change) and we were all going to similar locations and my cab arrived first. I get half-price taxi fares because of my wheelchair (government-sponsored program because so much public transport isn't accessible) so the whole fare for all three of us was less than ten dollars, so I just told them I'd pay for all of it. Made them very happy and seeing their happiness made me very happy too.

So yes ... productive doctor-seeing plus silly marks on forearms plus random acts of kindness equals a good day.

r
A flower with text "In life's name"
This is testing a post from my Dreamhack - a site that I have set up for doing programming to help advance Dreamwidth.

I want to work on a bug that's related to cross-posting something with lots of tags so I've set up cross posting to check how it works...

Note: Will this show up on LJ? not sure! wait and see...


Cheers,
Coder Ricky!
I'm disabled, not dead!
Disaster preparedness is something I've been thinking about lately.

My level of health is such that I have a few spare bits of energy to notice what's going on in the world now and one thing I've noticed is that a lot of people seem to have to leave their homes for a while when there's a disaster - or a possible disaster. People get evacuated.

I'm a lot healthier than I was a few years back but a lot of what keeps me healthier is established routine - being surrounded by people and equipment and medications which have been organised to support me. I can cope for a day or two without my helpers but I fall in a heap very quickly. Without my assistive equipment I rely much much more on my helpers to keep me going. Without my medications I would very quickly get severely ill and need helpers and equipment much more. Even if I have all three of these things, having my routine is still necessary - I need several hours sleep every afternoon to stay this well, I need regular food and lots and lots of water and so forth.

In other words my situation is fragile. I rely on a lot of supports to sustain my situation and if even one of these supports is disturbed a little bit - say, if a helper is suddenly ill and can't come - then my whole day is profoundly messed up and I need to rely on all the other supports to cope. If there was an evacuation, no matter how planned or supportive, it would be guaranteed to mess up my health significantly. This worried me so I have tried to make some minor preparations that could help me in the event of a disaster.

Some good resources I found along the way include:



So I've made an "in case of evacuation" kit, and I've thought about what would happen if the area here does need evacuation. In my evacuation kit I have lots of stuff specific to me, such as the printed "crib sheet" of my medical history/details and backup versions of all my scripts and over-the-counter meds I need, plus some non-perishable food that I know is good for me. I have printed contact details for all my helpers in there, a solar "emergency charger" for my phone/iPad, and a wind-up torch and radio, amongst other things. I also made an "inventory list" and attached it to the bag in the most visible way possible - the list includes instructions to grab certain thinks and toss them into the bag on my way out, for example my current week's medications, my wallet, etc.

For anybody who's interested, here's the actual inventory list:
Inventory list is long... )

Obviously everybody's list is different depending on abilities and needs and how much time you want to spend doing this. I wasn't going to actually include mine but lots of you asked :)

I've done a few other things - discussed with some local friends what I'm doing and why, and thought about things.

Most important to me right now is that having this stuff done makes me feel safer. The stuff on the list is in a gym bag in the bottom of my wardrobe and if I ever have to evacuate I'll grab it and take it with me, but even if I never have to evacuate from here it makes me feel safer just to have it. That's good too.

r
A flower with text "In life's name"
[Thank you, got enough answers now!]

Poll for anybody who keeps their own Dreamwidth journal...

This is not a test you can fail! This is to check how well Dreamwidth explains it's own terminology so it's a test of Dreamwidth and not a test of you. Please answer without reading the comments or looking anything up - I need to know what comes to mind first.

You can answer any way you want - use a web address or say what menu you use to find it or define the word or anything else. I'm the only one who can see the answers:

[Edited to add: "I don't know!" is a perfectly valid answer too!!]

Poll #7935 DW Terminology
Open to: All, detailed results viewable to: Just the Poll Creator, participants: 33

On Dreamwidth, what does "Reading Page" mean and/or where would you find yours?

On Dreamwidth, what does "Reading List" mean and/or where would you find yours?



Feel free to elaborate in comments.

Update...

28 Aug 2011 12:07 am
Moonscape, with the earth rising behind it
Lots of stuff!!! Here are some highlights ...




Have started hacked for Dreamwidth! You can see on the latest code tour that my first two tinsy tiny patches have been accepted and since we just recently had a code push they are now actually being used on this very Dreamwidth you are now using!

Getting started coding doing code for Dreamwidth is a huge task. Without the wonderful Dreamhacks run by [personal profile] sophie and the Dreamwidth Wiki and the very very kind help of numerous people on IRC I would have given up. I am feeling extreme awe and admiration for newbie coders who manage to get started - I haven't coded (much) for a long time but I am familiar with the general gist of things and comfortable with a command line and even I got so overwhelmed and frustrated that I nearly gave up. Those who started with less initial knowledge than I did and have managed to get themselves coding are really impressive to me!

In the name of saving my own brain from terminal overload I created a script that does a bunch of the routine "house-keeping" things for me and also has a good help function for the inevitable when I forget how to use my own script. I wrote it partly as a self-teaching aid but it ended up being quite useful so now we have Ricky's DW Do-Everything Script available for anybody who's interested in using it. Hopefully this slightly reduces the difficulty of getting up and running for the next crop of newbies!




In less virtual news I've been gardening a lot this week as the weather's suddenly flipped from "mostly winterish" to "mostly springish" and my brain has demanded that I muck around in the dirt. Actually I've been doing it to the point where it's a bit detrimental to my physical health so I'm trying to self-monitor a bit better about that.

This morning a bunch of kids who live around popped up and asked me all sorts of questions and I got to answer some fantastic things like what dirt was made of and why I couldn't grow an apple tree in the tiny 1x1m shaded plot. I really enjoy kids!

Also I am waiting quite impatiently for a $60 order from Diggers to arrive so I can plant more things.




Saw my EDS specialist on Monday. He wants me to increase the Midodrine (the orange tablets I call "magic pills", for those of you who know me RL) from 6 per day to 8 per day. I've been doing this since Monday and it seems that it's letting me somehow overdo it - I've been quite ill almost every evening since and had two of my weird "digestion attacks" which I know are more likely when I've overdone it. Not sure what to do about this but I'll play around with the timing of the doses to start with... does anybody want to draw half-life-type graphs for me?

The EDS specialist also wants to get me fitted for a lower-body Jobst Garment with high-level compression and an abdominal binder. These are the very tight/strong compression garments worn by burns patients and people with Lymphoedema, like "surgical stockings" but even stronger. The main garment will probably be like a pair of pantyhose and then the abdominal binder will go over the top. It sounds very strange but if you think about it these compression garments are trying to do the same thing that the Midodrine is trying to do: squeeze the blood up to where it belongs. The Midodrine squeezes the blood vessels by chemically triggering them to contract in the same sort of way that caffeine does. The compression garments will squeeze the blood vessels directly by squeezing all of my lower body.

From what I've read many people do find these helpful but they take a lot of energy to get on and they're not very comfy to wear. The other alternative is a G-suit (yes, G-suits are used for this!!) but those are hard to come by. Anybody have contacts in the Australian Defence Force - I figure they could make it a cool charity/media type thing to give me one :)




Last thing: Foster cat Peggie has been adopted! A wonderful couple came and played with her and have adopted her, they were really nice and I think she'll be happy. Anekin misses her a lot and has been very sooky this week.

That's all for now - how have you been?

Cheers,
r
A flower with text "In life's name"
I'm switching back to using my Dreamwidth and LiveJournal reading pages to read your writings since my RSS reader keeps telling me there's nothing new to read when there IS new stuff to read.

So I've just gone through and done a whole bunch of housekeeping on both accounts, adding and subtracting people from "friends"/subscription lists.

I don't think I missed anybody but I probably did ... so if you got a notice that I unfriended you on LJ and you now post mostly from DW that's why. If you got a notice of being unfriended and you still post from LJ most of the time please let me know because I'll miss you!

Today I am grateful for the rain and for the otherwise-mild weather and for the moments this morning when I was lying in my comfy bed with a cat on each side of me and we all soaked up the sun. I'm grateful to have so many wonderful friends who care about me, and for having a fairly-stable carer team at the moment. Also grateful that I have so many friends who are willing and able to introduce me to their local cuisine from so many different countries - I have carers from Vietnam and Egypt and Pakistan at the moment and they're all great cooks!!

Hugs,
r
A flower with text "In life's name"
G'day Folks,

Just a note to say I've turned on screening for anonymous comments on my Dreamwidth journal.

That means you can leave a comment without being logged in, it just won't be visible until I've OKed it to show up. It might take a few days - I'm slow sometimes!

Why? I have been getting a lot of anonymous comment spam, junk comments mostly, and it takes energy to delete them from Dreamwidth. This way I just have to OK the real ones instead.

So yes, if your comment doesn't show up now you'll know why!

Cheers,
r
A flower with text "In life's name"
The allergy attack I mentioned in the last post? I'm not sure what caused it - I originally thought it was the Benadryl PE but then I had a second attack in the morning and I had none of that med in the morning. There were also some new brand of throat lozenges but I had those on four occasions and only two coincided with the attacks so it might have been that or it may be something else I haven't even thought of. Have ceased to take either of them, just in case.

So yes, second allergy attack. And "gosh" I thinks and makes an appointment to see my doctor later that day ...

... or I thought I had. When I got there the doctor who called my name was a guy I'd never met before! Turned out that I have been asking for my Dr whose given name is "Joseph" under the incorrect name of "John" for the past several years... I had a "Dr John" for many years starting before I was even sick, so I think my brain mis-encoded this guy's name somewhere along the line. In retrospect I recall the receptionist correcting my naming of this doctor several times but it never mattered before because there was no "Dr John" at the clinic.

Except, evidently, now there is. I've met him!

Having met him I have absolutely zero wish to meet him again.

I went in there and explained I had this virus which had also progressed to a chest infection and was taking prescribed antibiotics and had had two unexpected allergic reactions which I suspected were caused by symptom relief meds, which I had taken to make sure I didn't mess up the names or anything. He gave me this huge lecture about how they didn't make the infection go away faster so I shouldn't take them. I pointed out that my pulled chest muscles (from coughing) meant that I couldn't actually rest at all without treating some of the symptoms and getting too tired aggravated my disability. He re-iterated that I shouldn't take the symptom relievers because they didn't make me better, and recommended I take Manuka honey[*]. He refused to give any recommendations on any symptomatic treatments that he thought might be less bad for me, despite my explanation that I was concerned about aggravating my existing conditions or rendering my immune system kaput because I was coughing too much to sleep. In the end he said I should take paracetamol (US: tylenol) if I had to.

I understand that people with viral infections who take symptom relieving meds and then go about their regular active busy lives and then complain about not getting better must frustrate doctors a lot, but geez! Despite me using my powered reclining wheelchair to get there he appeared totally unable to perceive that advice appropriate for a Type A businessman who refused to rest was not necessarily appropriate for yours truly. So yes, thank gods he is not my regular doctor, basically.

That was Friday. This is Sunday and I now have pulled muscles on both sides of my chest wall from more coughing than anybody should be doing, and almost no skin in the middle of my face because I have wiped it all off by blowing my nose approximately seventy seven billion times! I have invested in some of those stupidly expensive tissues which have aloe vera impregnated in them and they are indeed wonderful.

I did "give in" and take some Sudafed (pseudoephedrine stuff which dries up secretions) today once because I was so tired I was basically crying with exhaustion and also feverish and all the rest. I'm very uncertain about how sensible it is to dry up secretions when one has viral and bacterial infections of the respiratory system because, really, mucus that colour should not be inside me. But on the pragmatic side if I end up having a complete collapse and relapse because I killed myself trying to out-stubborn this that would also be dumb. So one dose of Sudafed this morning and I plan to take another dose just before bedtime because I really really really need to sleep! Am also doing all the usual stuff like lots of liquids and breathing in steam and trying to rest.

Oh, also drinking chicken and corn soup because that's a soup my Nana used to make and so it has truly splendid placebo powers! Also it's really easy to make: you use a packet of chicken soup, a packet of chicken noodle soup, a can of creamed corn, a can of corn kernels, a pile of cooked shredded chicken and a bunch of grated processed cheese. Make up both soups according to direction, you can cook them together or apart depending on equipment. Add all the rest of the ingredients and mix well. Scents of Ricky's childhood and something I can get my helpers to make without fuss!

Now I just have to remember to ask for Dr Joseph next time I make an appointment...


Hugs,
r

[*] It's a honey alleged to have exceptional anti-microbial properties. As far as I know these have only been tested for skin infections when it's applied directly (such as with burns patients) and the Wikipedia page is so exceptionally bad that I'm not linking it here.
A flower with text "In life's name"
Hello friends,

OK, so a few posts ago I was grumbling about a cold I got from my flatmate. Little did I know, that was just the start!

I took my virus-ridden self to the doctor on Monday and he said "why yes, you have a cold!" and also we suspect my weird bladder symptoms are a nagging case of interstitial cystitis which is not very good news. Anyway he said although my cough sounded impressive it was not bacterial but wrote me a script in case it turned bacterial - thank you angel doctor who understands how difficult it is to get there and back and how important it is to conserve energy!

So on Wednesday I woke up coughing up quite nasty looking stuff and phoned the doctor again. He said to get the antibiotics and start them, but as he hadn't phoned me back until 6pm and I wasn't feeling so awful then, I delayed the antibiotics until Thursday (today).

In the mean time on Wednesday while coughing and waiting for the doctor to call back I managed to pull some chest muscles coughing, which really didn't help matters.

Aaaaand so today I trundled down to the pharmacy in my powerchair to acquire some antibiotics, some cough medicine, some throat lozenges and some vitamin C. Also bought a wonderful tube of tissues because I forgot to take my hanky when I went out, and the tube was cute :)

I didn't cough so much during the day today so that was OK. About 3pm when I tried to rest I started coughing worse so I took some cough medicine. I was really tired so I vaguely registered that I was very itchy but didn't bother to investigate before I went to sleep.

Woke up a bit after 6pm when my evening carer got here and took more cough medicine and antibiotics and throat lozenges. When I wandered out to the kitchen 15 minutes later she pointed out that I was bright red and I realised that I was so itchy I'd scratched up my scalp and arms as well as my face. Sure enough, I was covered in bright bright red and very much itchy.

Phone calls to the pharmacy ensued because I am assuming it was the cough liquid - I've had the same throat lozenges and antibiotics before but not the cough stuff. But the cough liquid is carefully labelled "Benadryl PE: Dry cough and nasal congestion" in a dark red box and the stuff I usually take to deal with allergy attacks is also "Benadryl" (it's the "Original" one) and also in a dark red box. So we checked out and there's not a single active ingredient in common between the two despite the very similar name and labelling, so I loaded up on Benadryl Original and put a very large label on the other one to remind me not to take it.

And now, thirty minutes later, I'm now feeling considerably less horrendous. I'm still itchy but only in patches instead of all over and I can suddenly do magic things like thinking!

So yes, the universe is being very sucky and unfair today and I would like to lodge a complaint!

On the positive side, I got my helper tonight to make a big batch of chicken and corn soup the way my Nana makes it so I now have good chicken soup to make me feel better. This chicken and corn soup has major placebo properties because it was my Nana's recipe, plus it's gentle on my very sore throat which is nice. It's amazing how recipes from one's childhood can conjure up a feeling of safety and wellbeing, isn't it...

I hope you are all feeling rather better than I am just now!

Hugs,
r
Pile of thick books labelled "Geek"
[Reference Info: Mini earthquake. OK, barely-perceptible tremor. But Melbourne is not on a fault line so this is exciting for us... humour the crazy people here.]

I have decided that fatigue disorders give one awesome detection ability for earthquakes - I tend to spend almost all my time lying flat in bed without moving and have thus felt 2 of the last 3 decent quakes in Melbourne!

I was asleep during the middle one, which tells you one of the drawbacks of fatigue for an earthquake spotter... :)
A flower with text "In life's name"
Ugh. Have cold I caught from $flatmate. Have passed it on to at least one of my 4 current PCAs.

Actually, make that 3 current PCAs as one gave me a few day's "notice" and will be quitting after Tuesday as she's moving house. She's casual so technically doesn't need to give notice at all, but it's still a bit frustrating to be so quick. More frustrating because it takes 2-3 months to get a new PCA through the agency's paperwork maze if I want them to be employed.

And yes, I have a cold so tomorrow's root canal got cancelled. This is sort of a relief (hey, no root canal tomorrow!) and mostly a pain (another appointment gets tacked onto the end of the current series) and I'm frustrated because I want this tooth fixing over and done with thank you. It sucks spoons and time both.

Also have odd pelvic pain which seriously feels like I sprained my bladder. Trés weird. Will be asking the doctor about that one, I think.

More generally, health has been pretty much steady since about December. This is better than getting worse again, obviously, but also sucks because after such amazing improvements last year it seems sort of a rip-off to not be improvinig now. I'm seeing that specialist in mid August and I emailed him today so hopefully after August we'll have some new avenues of attack to try.

Right now I'm taking my snotty achy feverish grumpy self to bed but could you leave pictures of cute baby animals or something cheering so I can find them in the morning? I really need cheering up right now!!!

Love you all,
r
A flower with text "In life's name"
Hint to anybody else as dumb as me: When feeling down/grumpy/depressed this is NOT the correct night to start watching Go Back Where You Came From.

No, I did not break the computer screen by throwing things at the nasty racist people, but it was a near thing.

Grrrrrrrrrrrrrr.


r
Hands crafting a braid, with the words 'Clan Mitchell'
I hereby declare Saturday the 21st of May to be the next Craft and Chat day, because it's time to have one and [livejournal.com profile] koriyuri reminded me of that - thank you!

It will be (loosely) between 12pm and 5pm, and people can show up for all or any part of that. The usual ground rules apply, bring anything you need and if you can manage to bring something nibbly to share that's good too (but absolutely not required).

If you are a art or craft type person and feel like bringing your art or craft to work on (or just to show people), that's cool. In the past the definition of "art or craft" has included electronics and people working on laptops, as well as more usual stuff like drawing, knitting, embroidery, etc - basically anything that won't interfere with other people is fine to bring. If you just want to bring yourself and sit around and chat that's fine. Turning up and sitting in the corner and not talking is also absolutely fine, as is taking yourself outside for a break from being with others - lots of us have social anxiety or related things and you won't be judged for it (you may have to let us know you don't want to be talked to, however).

If anybody has any access needs I haven't covered, feel free to ask publicly or privately and I'll do my best.

Feel free to contact me with any questions, or leave a comment on this post.

See you there!

Cheers,
Ricky

PS
There's 2 cats here at the moment - I have a foster cat, Peggie, staying until she finds a forever home. Anekin isn't terribly impressed about this, as Peggie just arrived this afternoon, but he's just been hissing and growling a bit - nothing worse thankfully. *touch wood*
A flower with text "In life's name"
I just want to tell the whole world that I love my friends!

I am reading through my reading-list journals today and in the last few days worth of journal entries and other posts I've seen:

  • Spoiler/trigger warnings and cut-tags for multiple different potentially-triggery topics

  • Multiple people acknowledging (implicitly or explicitly) that somebody's identity doesn't necessarily match the body they're born into (in terms of sex/gender, name, etc.)

  • Multiple people explicitly stating that certain things are their own opinion and that they understand other peoples' opinions will differ.

  • Textual descriptions of images used in significant ways.

  • User-added transcripts of included non-captioned video.


So yeah, you guys rock. Totally.

Nobody's ever perfect about recognising and acknowledging privilege, being accessible, making sure their language expresses exactly and only what they mean, or any of the other stuff but seeing people doing their best with all that stuff .... wow. It matters a lot to me that I hang around people who think this is a goal worth shooting for!

I was just sitting here being impressed. So yeah, you folks rock. Thank you for being you!!

- Ricky
A flower with text "In life's name"
Due to many reasons, including "I feel like it", I read all my livejournal/dreamwidth friends' journals in my RSS reader (with my DW/LJ passwords so I can read flocked entries) instead of using my reading list/friends list page like most people do. My RSS reader is NetNewsWire, a Mac program, and it generally works just fine and does what I want. Mostly I trust it not to be stupid.

So some time around my birthday in early February I decided to turn on NNW's ability to sync itself with Google Reader so that if I felt like reading your posts on my iPad I could do that and the iPad would magically know which bits I'd read and which I hadn't and so forth. So I turned on the "sync please!" tickybox in the preferences and left it at that.

Apparently Google Reader doesn't let you read feeds which need passwords, but I didn't know that at the time as I'd never used it before. NetNewsWire, which should have known better, silently dropped my subscriptions to all my DW/LJ journals - the only journals I read that need passwords. In retrospect, I dimly remember this happening and me making a mental note to re-add them. It takes a bunch of time to add you alllllllll to my RSS reader so I must have put it off ...

... and then I somehow forgot about it.

I haven't been keeping much up to date with journal reading of late - I have been busy with RL and other fun and new-to-me things I can do with my newfound health! Fun RL things yay! So somehow I didn't really notice that in the big mess of mostly-unread RSS posts there were decidedly fewer unread posts than I would expect... I do remember in the past week or two dimly thinking "Hmm they're all fairly quiet lately" but that happens every so often so it's not all that weird.

Anyway, I FINALLY figured this all out yesterday and re-added the DW people to my RSS reader, carefully ticking the "DON'T SYNC THIS!" box. If I ask it to sync one of the passworded feeds it agrees, then silently unsubscribes me from the feed.

[Dear NetNewsWire, THAT BEHAVIOUR SUCKS. You should know better. Please improve ASAP!]

So yes. I am here. Please tell me what you have been up to for the last two months because evidently I missed it.

Hugs,
Ricky
Matt Farrell looks bemused. Text "Win?!?"
(I totally need a "facepalm" icon ... Anyone?)

Dear Self,

Drinking diet coke at 4pm leads to being wide awake at 4 am. You have been warned.

Don't. Do. That. Then.

Love,
Your Sanity
A flower with text "In life's name"
Knowing the reading habits and memory capacity of my various friends, I'm sure many of you are familiar with this quote:

A human being should be able to change a diaper, plan an invasion, butcher a hog, conn a ship, design a building, write a sonnet, balance accounts, build a wall, set a bone, comfort the dying, take orders, give orders, cooperate, act alone, solve equations, analyze a new problem, pitch manure, program a computer, cook a tasty meal, fight efficiently, die gallantly. Specialization is for insects. -- Lazarus Long


Somebody posted it where I read it today and it made me think ...

I don't think LL's list is really approriate for 2011 But I can do some: diaper, building, sonnet, accounts, wall, bone, take/give orders, cooperate, alone, equations, problem, manure, program and cook are all ones I've done or participated in substantially. I have seen an animal butchered (cow not pig), ship conned (sea not space) and could do it with practice or a good book. I hope I will die well and hope I don't find out for a very long time. The invasion planning I hope never to be involved in but I am good at that type of thing (supply problems). Don't want to know how to fight well but I would like to be better at running away! Comforting the dying I have never tried but I am good at comfort in general. Wow, I'm not so bad at these...
Hotch with a gun standing in front of party balloons, text "My fandom is incongruous"
Today's straw poll ... First check out this eBay auction for a white horse lamp.

[Visual description: The lamp consists of a small statue of a white horse, with a short post emerging out of its head with a fairly standard lamp and white lampshade on it.]

Poll #5681
Open to: All, detailed results viewable to: All, participants: 30



What are your reactions to this lamp?

View Answers

Awww, white horses are so gorgeous!
3 (10.0%)

That's ... umm ... a rather odd lamp.
17 (56.7%)

Ewww.
2 (6.7%)

OMG, why did they stab that horse with a lamp!?
7 (23.3%)

I would totally use this as my bedside lamp.
1 (3.3%)

I would not mind this as my bedside lamp.
4 (13.3%)

I would prefer not to have this beside my bed.
10 (33.3%)

Get it away from me, this lamp would give me nightmares!
3 (10.0%)

It's a Companion!
5 (16.7%)

Ohh, poll time!
12 (40.0%)

Something else which I will tell you about in the comments.
5 (16.7%)



You find the weirdest things on eBay while looking for something else!
A flower with text "In life's name"
If I was hypothetically looking for a mobile phone with a good camera and the ability to be a wifi hotspot AND which could be purchased outright so I can use it with a prepaid voice/data SIM here in Australia, what would you tech people recommend?

I realised yesterday that I am considering buying a new camera (my 7.1 megapixel point-and-shoot is falling apart literally) AND after the saga with my "Mifi" type wireless 3G modem I have to get a new one of those ... and that hence it would probably be smarter to just buy a better phone. I do actually have a mobile phone but it's a very very simple no-internet non-smart Nokia that just does voice and text messages and is a pain to use. I just have the phone basically for emergency purposes when I'm out - I don't use it really at all, but now I'm going out alone it'd be dumb not to have it around.

Carrying one device instead of three would be nice, to start with, and less things I have to remember to charge and remember to bring with me!

My default would be to get an iPhone since then it's (a) a business expense (b) something I can use for ATMac app reviews, but you can't use an un-jailbroken iPhone as a wifi hotspot or even a bluetooth tether for an un-jailbroken iPad and that's why I want the wifi hotspot/tether functionality. I did see some rumours that iOS 4.3 might have personal wifi hotspot functionality but I don't have any confirmation of this so I figured I'd explore other options in the mean time.

Opinions please!!

Cheers,
r
A flower with text "In life's name"
Status report for your general amusement ... this may be a lot funnier to those familiar with Steiner/Waldorf education.

Number of Steiner-type flannel dolls finished to give to friends with newborns: 2

Evidence:
Two pale yellow flannel dolls which basically resemble rectangular cushions with heads and vaguely defined waists.

For the record, this has been my main "carry around when I go out and sew while waiting" project for the last little while. This is relevant to the following statistics.

Number of people who have spotted me sewing these and asked if I was a Steiner kid: 1

Number of people who have not recognised the nearly finished dolls as dolls and asked what my "cushion" was for: 1

Number of people who have asked when I was adding the "face" or exclaimed sadly over the lack of defined features: 7


Fun had while explaining why my cushion was a doll, or why my doll had no facial features: PRICELESS!

I am tempted to start making felt gnomes now, just for my own amusement as people react to them...
A flower with text "In life's name"
Today's lesson is about the perils of being well enough to go outside!

First a photograph, textual representation following:

Photo of a woman in a powered wheelchair, visual description follows.


[Visual description: This is me sitting in my powerchair in my lounge room. I'm wearing a T-shirt that's mostly a very dark grey colour, with small patches of light grey, and what appear to be shiny black skin-tight pants. My glasses are covered in drops of water and my hair is wet and sticking to my scalp. I'm grinning like a very happy person!]

I went out to a craft group today - never been before and had lots of fun, I think I'll go back. It was raining when the group ended but I figured I couldn't get too wet in the ten minutes it would take me to get home. This may have been a slight miscalculation...

Those little bits of light grey colour on my T-shirt, that's my T-shirt's actual colour... the 90% of it that's dark grey is the "wet through" colour. The reason my cargo pants look shiny is they're also glued to me with rainwater, as is my hair. We had to remove all of the bags and other removable bits from my wheelchair afterwards to let them dry off, which they're still doing as I type this.

When I finally dripped my way into the bathroom to get changed, I discovered that even all of my underwear was soaked through. It was really raining quite a lot...

Luckily I'm still new enough to this whole "venturing outside" gig that being soaked to the skin was actually a lot of fun, and it was warm as well as wet.

Oh, and it's a T-shirt my Aunty made for me - it says "DANGER Superhero inside. Do not open." My aunty makes brilliant stuff when I ask her!!

That reminds me that I need to go clothes shopping soon, do any of you locals want to come with me for immoral support? I generally end up hating my body when I go clothes shopping, so having somebody to remind me that clothes designers are idiots helps a lot.

Hugs,
r
A flower with text "In life's name"
I've wanted to move to the Mitcham/Nunawading area for a few years now - I'm on the appropriate Ministry of Housing waiting lists but they're verrrry long ... like, in the order of many years long. Just before Christmas I got a match on the "swap list" of a couple who lived around there who wanted to move to around here, which would have circumvented the waiting list. I didn't tell anybody because I was afraid I'd jinx it or something ... unfortunately my anti-jinx-fu isn't strong enough because it fell through as they decided this place wasn't big enough for them (without seeing it). I just found out a few days ago :(.

But as brains are wont to do when new possibilities pop up, mine went "ohh, interior decorating time at new house!" and has been very much with the figuring out what I want and what styles suit me.

Luckily I know somebody who's been writing a series about interior decorating and how to figure out what you like!

  1. How to Decorate: Everything I've Learned from an Interior Designer Mom

  2. How to Decorate: Phase Two, i.e., What Do I Have, What Do I Need

  3. How to Decorate: Phase Three, i.e., What Do I Like?


I suspect you'll eventually be able to see the whole How To Decorate series here.

Anyway, I went through what she said with pictures and all and very quickly found words coming up over and over. A lot of the words seem related, which isn't really surprising. Here's the whole list of things I love about spaces, in a completely unsorted and unsifted way:

  • Glass-fronted cabinets and cupboards, especially for storing books.

  • Irregularly shaped spaces.

  • Spaces which have elements of both "indoor" and "outdoor" about them, or can't easily be classified as "inside" or "outside" (Rosanne: Interstitial spaces!)

  • Hard floors with rugs, rather than carpet.

  • Open plan spaces divided by movable things like bookshelves, sofas, and dividing curtains.

  • Cozy nooks.

  • Mirrors.

  • Corner sofas.

  • Mirrored cupboards/cabinets.

  • LOTS OF STORAGE SPACE.

  • Natural light. Windows. Skylights.

  • Interior windows between rooms.

  • Space - no clutter.

  • Greenery. Plants inside and visible through windows.

  • Imperfect things: handcrafted, loved, personal.

  • Things which are in sets but don't precisely match (eg chairs).

  • Light coloured woods, but without too much yellow or red undertone in them.

  • Metal fixtures.

  • Natural fibres.

  • White or cream coloured paint.


I know some of those are very specific and others are very general - as I said, the list is currently unsorted and unsifted! Indeed, the next step in the instructions is "narrow down your words" but I have not managed this at all because I don't know words that cover large sections of this. Because there are specific areas (words about spaces, words about colours, words about light, etc.) I think I'll make it into a mind-map showing which bits are subsets of each other and perhaps it'll be clearer then. I'll post it here if anybody's interested.

So that's where I've got to. I'm feeling very "nesty" and interested in doing what I can within budget and rules to make this house into a space that's closer to what I want - not that it's terribly bad now! I'm very lucky :). Happy to get feedback and suggetions from people...

Cheers,
r

PS
Oops, almost forgot. Things on my "Definitely don't like" list were:

  • Dark colours predominating

  • Dark spaces, spaces without natural light

  • Very symmetrical or "perfect" looking spaces

  • Clutter or mess


Unfortunately all the wonderful furniture I've inherited from my grandparents is a very dark walnut colour, deep deep chocolate brown. It also has many positive memories attached to it - it's been in Nana and Pa's house all my life. It's gorgeous and beautiful but I wouldn't choose it myself.
A flower with text "In life's name"
I have a TV receiver attached to my computer, and using EyeTV I record shows directly onto my hard drive. I've noticed a few interesting side-effects to this over the years I've had it, and I thought I'd ask if anybody else does the same.

I seem to prefer to watch many episodes of the same show in a row, rather than episodes of different shows. I only watch probably an average of half an hour to an hour a day of TV, so when I say "many in a row" I mean probably 3-4 episodes of a show over a week or so, they might be all on the first day then none until next week or they might be spread 1-2 every night or two. It varies depending on my energy levels and interest - if I'm having more trouble doing "out of bed" stuff then I generally watch more TV, but given the choice I'd prefer to do RL stuff most of the time.

Because I can easily record 50+ shows, and with the electronic program guide I can tell it nifty things like "please record anything with 'BBC' and 'documentary' in the description that isn't a repeat" as well as recording regular shows automatically and picking specific specials out of the online guide and recording those. So I have ... well, at the moment I have 43 recordings, of which 3 are movies. Of the 40 TV shows, they're divided between 20 different programs if I count everything; 12 of the 20 are single-episode documentaries (mostly BBC ones!).

This week I've been watching all the episodes I had (five) of "Big, Bigger, Biggest". It's a bit contrived in spots because they had a very definite format for the show and some of the development paths of the things they covered seemed shoehorned quite a bit to get into the correct format. But the program was interesting and I learned nifty things like how to prevent dams from suffering from toe scour, why space stations require astronauts who can do space walks, and how gyroscopes keep cruise liner passengers from being (too) seasick.

The biggest problem caused by large-scale inhalation of documentaries is that I keep ending up lost in Wikipedia, as described by xkcd. Such a terrible life I have!!




In other news, I have borrowed an unused exercise bike from my parents and plan to start riding it. Who wants to take bets about when I'll fall off? I've been using a tinsy pair of pedals sans bike but they were very cheap and consequently difficult to put any resistance on.

I also scored a now-unused pizza maker as they've "traded up" for a newer model - yay for relatives with rooms full of unused stuff!




That's all for now. I haven't been writing here mostly for the wonderful reason that I have been well enough to do stuff away from the computer and doing trumps writing about it any day! So at this point, no news is very good news.

Hugs,
Ricky
A flower with text "In life's name"
I've been meaning to write some end of year stuff because this year has been such an unbelievable one for me... The one-sentence description of this year is "I am healthier now than I thought I would ever be in my life!"

How's that for a year!

This year I have advanced from...

... from no daily sitting out of bed to 2-3 hours daily out of bed. I can sit up longer if I push but then the next day I pay for it.

... from not able to walk around the house at all (not even to the bathroom) to being able to walk around the house at will and even walk outside very briefly.

... from needing to use (mostly) female urinal and (sometimes) commode beside bed, to being able to always use commode beside bed, and now to being able to walk to the toilet whenever needed.

... from needing to be washed by a carer while lying in bed to being able to shower and wash my hair by myself, needing just a shower chair to sit down in.

... from spending all my time in a hospital bed in the lounge to having a regular bedroom and using my hospital bed as a "day bed". See blog entry 'Bedrooms!'

... from being predominantly horizontal while lying in bed to mostly sitting at around a 40 degree angle when in bed during the day.

... from having to be taken via stretcher ambulance to vital hospital appointments to being able to go by myself (using my powerchair and wheelchair taxi) or being driven by somebody willing to push my manual chair around when we get there.

... from doing physiotherapy lying in bed for less than 5 minutes a day to being able to do a 30 minute exercise routine involving sitting and even some standing, and being able to slowly swim 200m in my local pool. Actually I am doing a bit less physio now I am able to walk around the house as I am using up some amount of energy with the walking around, but I'm still increasing the amount of energy I have.

... from having difficulty balancing with both feet together on the floor to being able to balance on one leg until I start to get dizzy (ie: I lose balance because my blood pressure gets low, not because my balance is crappy).

... from having no social outings to being able to go out for coffee and even for a few hours to a party. I was able to attend Quiric's baby shower, attend Renee's Midsummer party for the first time in either 8 or 9 years (we lost count!) and will be attending Thorfy and Seedy's new year BBQ tomorrow. And I spent Christmas at my parents' place with my family - it wiped me out tremendously, but I stayed as long as all the other guests!

There are, of course, a whole bunch of other things that lead from these basic abilities. For one example, I can get myself a very simple meal now by grabbing something from the freezer and sitting on the kitchen floor while it microwaves. I can answer the door in person instead of using the remote control unlocking device if I so choose, which often has a gratifyingly startling effect on anybody who knows me and has come to visit!

I can also use my powerchair to visit the local shops and I go out to see my massage therapist and physio now instead of needing home visits. I've been to the library a bunch of times too which is brilliant, and am planning to go see a movie with my Mum soon.

So yes, basically 2010 has been so utterly unbelievably wonderful that it's beyond my WILDEST expectations and almost beyond belief even for me - and it's happening to me! If 2011 is even 10% as wonderful as this year has been, I will still feel blessed.

Here's to a healthy and happy 2011 for all of us.

Love,
r
A flower with text "In life's name"
I'm putting together a Spoonies Team On HealthMonth.com for January - if there's interest we'll continue the team past January as well for as long as people want to play.

What's HealthMonth? It turns keeping yourself healthy into a game! You pick your own rules from a list, which includes an option to make up totally customised rules. Here some of the rules that I've chosen for myself:
  • List things I'm grateful for 6 days a week

  • Stop using the computer after 6pm at least 1 day a week

  • Sleep at least 1 hour in the afternoon at least 5 days a week

  • Do my physical therapy exercises for 20 minutes at least 2 days a week

Your rules might be totally different, obviously - you just pick whatever suits you. If you have three or less rules then you can play for free, otherwise it's US$5 for a month.

There's a game "wall" where you can see how other Spoonie team members are going, post information about yourself, and generally cheer each other on.

January will be the third month I've done this and I find it really helps with getting into good habits and then sticking to them!

- Ricky

ETA: If anybody wants more than 3 rules but can't afford the US$5 and wants sponsoring, just ask me.

Bedrooms!

11 Nov 2010 09:50 pm
A flower with text "In life's name"
Being now well enough to switch from 'bed for being awake' and 'bed for being asleep', this week we rearranged the junk/guest room into a BEDROOM!

I keep meaning to post with a proper visual description and being thwarted by my lack of spoons, but here is the link flickr set of Ricky's house which I took last week, with sincere apologies to those who can't "do" photos.

Now I have enough energy to walk around the house a bit I keep using up all my energy walking around the house and not having enough for physiotherapy. Oooops. Not sure how to manage this yet, or whether I can count bits of short walking as physiotherapy - I see my specialist tomorrow though so I'll ask him.

Hugs,
Ricky
A flower with text "In life's name"
[This is actually "yesterday" by the time I finished and posted it - it's around 24 hours later now.]

Had a drama-filled day today. Set off to Rebel Sport to buy a kickboard for my hydrotherapy exercises - it's down in Prahran but didn't look far on the map, honest! My cunning plan was to buy the kickboard then go swimming on the way home.

Firstly I got distracted by discovering that Windana (drug/alcohol rehab place close to here) has a bunch of great community services like massage therapy for $35/hr concession and anybody is allowed to access them, not just clients ... and their massage therapist happened to be free right when I dropped in! So that delayed me by about an hour and a half all up plus gave me a post-massage hangover which I should have expected (but had not thought about).

Then I got delayed by the Chapel St shops in a big way - I forgot that travelling down strips with shops (interesting shops I have not been past before, to boot) is so very much slower than travelling on familiar open footpath with no obstructions... and then I got there was further delayed by the enticing shoe section at Rebel Sports (nothing fit, in the end).

... and then I had to buy some lunch so I could take my tablets because I'd been out so long, which didn't take too long but was extra time and energy. Anyway, by the time I got back and went past the pool I'd been out for 4 hours and couldn't possibly have managed hydro so I just went home. (Somewhat lucky that I was too tired for the pool - I realised this evening I'd forgotten to take my towel!!!)

So got home and collapsed into bed at 4pm and failed to nap much until 6pm when Trina came. Felt awful and exhausted as I had the post-massage hangover effect extra strongly because this massage therapist isn't familiar with me, added to the "sat up for too long" crappy exhaustion from being out for twice as long as I'd expected.

in which Ani doesn't kill a bird ... but we think he did )Exhausted and post-massage Ricky was now also tachycardic and coming down off a very major spike of adrenaline. Really really REALLY not what I needed to be doing tonght...

Am now going *flop* in a major way!

Love you all,
r
I'm disabled, not dead!
OK, who wants to help me build a new powerchair that actually suits me?

The sort of thing discussed on the ultimate powerchair, only customised for a Ricky not the guy who wrote that particular web page ... if you're interested there's a ton to read through on his website [see reading list], and it's not particularly laid out in a useful order so you sorta have to read it all and then cook the information around in your brain (I'll add the links to the end of this post). But the upshot of it is he turned this ugly green Quickie F55 powerchair:

Ugly green and black power wheelchair

Into this:

Sleek black powerchair with significantly smaller footrest and armrest build, and seat mounted further back on the chassis.

Major changes:
  • Entire seat is mounted further back on the chassis, so the center of gravity's just forward of the back wheels. This makes it more manouverable and easier to jump up kerbs and things. Also more likely to tip you on your ass if you aren't paying attention, but that's the standard wheelchair tradeoff. It also incidentally makes the whole chair shorter from front to back.

  • Standard swing-away footrest deal replaced with a compact footplate that makes the chair shorter still.

  • Joystick controller is reprogrammed to give more power/control to the user, which again (tradeoffs) means it's a bit less safe in some senses but much nicer to use.

  • Redesigned and replaced armrest mounts to make them more usable and also end up with a chair several inches narrower.

  • Weirdly sized wheelchair wheels/tyres (both front and back) replaced with standard sized wheels and tubeless anti-puncture tyres.

  • Everything's been powder coated or converted to steel so it won't corrode or break down.


There's various other things too, replaced anti-tip wheels, different batteries and electronics, etc. There's honestly very little of the original chair left! My changes would be somewhat different, and I'd have to start with a different base because my chair's tilt-in-space, but the basic theory is pretty much the same.

Would make a great project - anybody interested?

Cheers,
r

PS
Reading List:

TIMEOUT!

7 Oct 2010 03:15 pm
A flower with text "In life's name"
I'll be hiding in bed having a very quiet meltdown. Have been doing TOO MUCH stuff and need to recuperate. Please whack me (nicely!) if you see me doing anything, OK?

busyR
Standrd glyphs representing disability, blindness, interpreters and information.
So ... time for some news and stuff ...


My hernia operation was deemed a success, though of course I'm not all healed up yet. I came home a week ago and have been generally hiding and recouperating since then ... I'm still very sore which is concerning me a little, but I have a post-op checkup at the hospital on Tuesday so they can make sure all is well.

Also have to see the dentist on Thursday, which I would otherwise put off but he's very busy and I had to make the appointment a few months ago, so unless I'm completely unable to make it I'll call a cab and drag myself along there. Hopefully it won't be too bad - it's three fillings but none of them are about to make my jaw fall off, I just don't want to leave them until they do incapacitate me with pain because really I have better things to do!

In general, operation aside, my health's still going great with the Midodrine. I'm still on enforced no-exercising-after-operation rest

My garden is in full "riotous spring colour!" mode with freesias and geraniums and that-yellow-thing-I-can-never-identify all flowering and my deciduous trees bursting into leaf and everything growing like topsy. It looks utterly glorious and, as every other year, I'm enjoying having the shade from the leaves of the trees which means I can have the curtains open with much less eyestrain going on from the glare!

spring-garden

I also finally got my new wheelchair! Here is a photo:

Mobility Plus Wedge Wheelchair

It's all a very sexy matte black at the moment which is great but a bit too understated for my long-term liking, and I'm not too fond of the grey tyres and grey-brown pushrims with the black frame.

I got the frame in black because it's the only un-switchable bit and I'll be stuck with it for a decade. I was tempted to go with something light royal purple but then I realised that in 10 years I'll be 45 and ... eek, scary thought in general really! So I got the un-swappable bits done in matte black and planned to switch around the switchable bits.

I've seen some tyres which both come in a sort of Royal Blue that I really like:
1. http://www.sportaid.com/schwalbe-rightrun-wheelchair-tires-24-x-1-25-540-145psi_pr.html
2. http://www.sportaid.com/primo-v-trak-black-side-wheelchair-tires-24-x-1-25-540-4-colors.html

I also need to get some tape for the handrims anyway, to make it easier to grip. It's the type of tape people put on tennis rackets for grip so I imagine it comes in about a million different colours and I'll be able to match the blue without too much hassle. At least, I hope so!!

I'm also planning to switch the cargo net (droopy thing under the seat - you toss things in it to carry them) to a blue netting by grabbing a bunch of blue cord and digging up my long-lost macrame skills! I've had a look at the current netting and it's not finished off at all really (my craft teachers wouldn't have been too impressed!) so it'll need some sewing anyway and making netting is easy. I am not sure where to get the right cord, but I am fairly sure that Google will be able to help with that one.

I can't remember any other bits and pieces just now, so tell me what I forgot!

you're all wonderful:)
r
A flower with text "In life's name"
Am safely ensconced in the Alfred hospital being dripped on ... Or hooked up to a drip, or something :)

In a noisy bright 4 person ward but am being treated well and it's not too bad.

Yay for 3G wifi modem for iPad - you were all correct and it helps lots.

Miss my cat!!!!!! Poor Ani all alone!

Food sucks, as per expectations ... It is a hospital after all and dinner was something vaguely resembling curry - after years of genuine curry cooked by flatmates and carers from India/Pakistan/Sri Lanka a crappy hospital curry is just not good enough. Also, they served it with mashed potatoes!!!!

Everything hurts, I am way exhausted and wanna go home, and I MISS ANEKIN. So basically, I'm as fine as I expected and don't worry about me :)

Resting now
R

PS
Love and hugs and thanks to commenters. No energy to reply to each but appreciate muchly :) I have best friends ever.

Today!

15 Sep 2010 08:25 pm
Standrd glyphs representing disability, blindness, interpreters and information.
Had a brilliant day with my Mum, Anne Oberin, including proudly viewing her work in the Kirra gallery in Federation square, and a wonderfully surreal lunch inluding yummy iced coffee, floppy pizza, and then - unexpectedly a textile artist from South Korea and a National Archives employee from Queensland (they are friends). Story follows...

Read more... )
A flower with text "In life's name"
Argh computer seems fried again in just the same way! At the very least it's off to the shop for more diagnostics.

At least I'll just have my operation while it's away, and in a fit of over-organization I filled my iPad with audiobooks and videos last night so I have them to watch in hospital. Could be worse...

See you on the flip side.
R
A flower with text "In life's name"
I may have possibly spent quite a lot of money while I was out today...

Well, OK, I did spend a lot of money. My savings account is wincing as I type. This is very unusual behaviour for frugal me!

What did I buy ... umm ... I'm not telling prices but in descending order of expensiveness:
- New glasses and frames (necessary, although I could have got cheaper frames the ones I got are ones I really like and glasses matter)
- A battery powered wifi modem so I can use my iPad while I'm in hospital (definitely a luxury!)
- [ censored ] (This one's a secret today, as is the reason why it's secret. I'll tell you all tomorrow night :))
- Toiletries bag (handy for hospital)
- New watch battery (necessary)
- Part of my Dad's birthday present (very necessary!)
- Assortment of MSG-free nibbly things (handy for hospital)
- Some kitchen sponges and other tiny miscellanea we needed.

I had LOTS of fun, and the only bit I'm seriously thinking "Hrm, this wasn't needed..." is the wifi modem, which I have not yet opened for that reason. I am sure I could get my money's worth out of it, but it is a luxury...

I may have partially been shopping to distract myself from being nervous about my hernia operation on Friday. But mostly, it was fun!

Hugs,
r
Sleeping cat draped over cushions
*Anekin cat walks up to Ricky, sitting on an easy chair and drawing, lap covered in materials*

Ricky: Hi Anekin, sorry but there's no space for you here just now.

Anekin: Mum, there's no space on your lap! Fix it at once!

Ricky: Hey, stop head butting my drawing! Could we cuddle later instead?

Anekin: Mum, there's no space on your lap! Fix it at once!

Ricky: You're sitting on my paper and creasing up my drawing, please come back later!

Anekin: Mum, there's no space on your lap! Fix it at once!

At this point Anekin gives up on the hopelessly idiotic human understanding the order and sits on the drawing book, and because I am a walkover I end up moving all the drawing stuff to safety and paying attention to the cat instead.

Anekin: 1
Ricky: 0

:)

Good news!

2 Sep 2010 12:20 am
A flower with text "In life's name"
Found an appropriate video card on eBay and it's being delivered straight to the repair shop thanks to a cooperative seller. Total cost should only be $260!!!!

Cross fingers it all comes together for me - missing you so much now! I expect to be online early next week... *touch wood*

Next challenge: trip to dentist in the morning. The Fun never stops aroung here :)

Love
R

Ps thank you for all the supportive and encouraging comments - not going to break self replying on iPad as I know you all understand!
Hands crafting a braid, with the words 'Clan Mitchell'
Heard from the computer shop this morning... The bad news is that my computer's graphics card is busted. It needs a Geforce 7300 GT (or some other compatible PCIE card that's for first gen Mac Pro computers) and the only one they can source is from Apple themselves which would end up costing me $960!

Apparently there's cheaper ones available online but they are hard to search for using only my iPad... It's useful but the most un-ergonomic thing ever invented I think. Not for extended use by Rickies with already-sore necks, at least.

Have been enjoying my computer holiday but missing you all! Especially now I'm less sure when I'll be properly back... I actually costed up my ideal mac mini system and it's $2233 including everything I want. Tempting if I can't find a decently priced graphics card, especially.

So, can any of you google geniuses find me what I need? Pretty please?

Ricky
A flower with text "In life's name"
My computer is dead. Thank god for iPad but I suck at typing on it so everything will be rather shorter than usual!

I will be mostly offline and can't guarantee reading email - might get to it or might not. Please phone for anything important or time sensitive!

Computer is at shop - they estimate 5-7 days just to have time to diagnose it and give me a quote for fixing - 1 month out of warranty of course...

(and please send good vibes to puter that it only has cheap things wrong with it!)

(OTOH if is veery dead I get to buy a new one ...)


For local friends: I am doing a crafty project that requires about 20 plastic soft drink type bottles or similar. All sizes accepted - will just recycle any spares. Suspect i will need 1.25l and 750ml bottles most but not sure yet. Please collect any you use for me if you could visit to drop them off. I promise to post pics.


Would love to visit people turning up for WorldCon. I will be there one day (not sure which yet) and live about 20 mins away close to public transport. Leave comments here please in case I miss your email.


Love you all. Rest of news (lots) will need to wait until I have a proper keyboard. Typing on this is NOT ergonomic!

Ricky